Tag / family story
Sometimes, the sickest twin knows it’s poorly and makes the noblest sacrifice to save the other. That is what Leo did. He became Oska’s guardian angel and saved his life. Now a charity has been established in his memory.
News • Feb 18, 2019 11:49 GMT
When he was almost a year old Oska Feasey became very unwell and was rushed into hospital. He deteriorated quickly and was blue-lighted across to Royal Victoria Infirmary where his family were supported in Crawford House. They spent several weeks living in the ‘Home from Home’ over the Christmas period and have been supported by the charity twice more since.
News • Feb 14, 2019 12:03 GMT
Jasmine Casey was born seriously ill and underwent 11 operations in the first six months of her life. During this time her parents were supported at Crawford House. Since finding out more about The Sick Children's Trust, Jasmine has been determined to raise money and awareness for the charity.
Christmas and New Year were a horrendous time, but at least my family were kept together thanks to The Sick Children’s Trust
News • Feb 12, 2019 12:27 GMT
Connie was diagnosed with spinal muscular atrophy type 1 when she was just seven weeks old. This is a neuromuscular disorder and babies with the condition rarely live beyond the age of two. However, a week later her parents met with a specialist, who told them about a new drug, Nusinersen. Connie had her latest injection the same day she celebrated her first birthday and is stronger than ever!
I had only just started to look pregnant when my baby girl arrived 106 days early. After spending four months in hospital we finally took Sophia home in December and have just celebrated her turning six months old.
News • Feb 11, 2019 16:05 GMT
Will and Vicky Simpson stayed with us at Stevenson House after Sophia was born at 24 weeks gestation weighing just 1lb 10oz. She overcame many challenges during the initial few weeks of her life and was transferred to Broomfield Hospital, closer to home, at just eight weeks old. Miraculously her parents took her home for the first time in December and she has just celebrate turning six months old.
We said our final goodbyes to George five times in the first few months of his life, but against every odd our brave baby pulled through and made it home from hospital
News • Jan 24, 2019 12:27 GMT
George Bownes was born at just 23 weeks and six days last July weighing 700g. At six days old he became seriously ill with necrotising enterocolitis and underwent emergency surgery and miraculously he survived the procedure. When he was five months old George was transferred to Sheffield Children’s Hospital and his parents, Hanna and Daniel, moved into Magnolia House.
I had a healthy pregnancy and there was no clue that my birth would be anything other than straightforward. What actually happened, however, was my worst nightmare.
News • Jan 18, 2019 14:01 GMT
Jemma was in labour for 24 hours before her son, Alfie, entered the world. Although he was born healthy and breathing, things soon took a turn for the worst when Alfie started having seizures. He was separated from his Mum and rushed to Cambridge for specialist cooling treatment. During his time in hospital, we supported Dad Luke and Grandma Donna in Chestnut House.
News • Jan 18, 2019 11:20 GMT
At a young age Connor was diagnosed with a condition called scoliosis, which is the curvature of the spine. By the time he was nine years old, his spine had curbed to 96 degrees. Last year, he had to undergo world first pioneering surgery at Sheffield Children's Hospital. During this time, his parents Michaela and Marios were supported at Magnolia House.
At Guilford Street House I could take a step back from the ward to recover from the physical and mental exhaustion.
News • Jan 17, 2019 09:03 GMT
Harry’s life is split between Great Ormond Street Hospital, Birmingham Children’s Hospital and Warwickshire. Harry’s had to undergo major operations and his parents have been told several times that he may not live to see another day because he has a rare heart condition called Shone’s complex. His dad has been supported at Guilford Street House.
Until I was in that position I’d never considered how long some families are away from home, by their child’s hospital bedside.
News • Jan 16, 2019 11:57 GMT
Jack was born with a rare condition, duodenal atresia, which occurs in 6,000 babies. At just two days old, he underwent major surgery and remained in hospital for the first three weeks of his life . While Jack's mum could sleep on the ward, Jack's dad was supported at Crawford House. Jack is now doing really well and his family and friends have raised over £450 for Crawford House.
Seeing Bobby laugh and play with his sisters in an environment other than the hospital ward gave us the small glimmer of hope we so dearly needed.
News • Jan 14, 2019 16:31 GMT
At just five years old, Bobby, was involved in a car accident which left him with life-threatening injuries. and was airlifted to Addenbrooke’s Hospital, Cambridge. He had just a 10% chance of survival and within 48 hours underwent three brain surgeries. It was during this time that Jeff and Carly were told about Acorn House, which became their home for four months.
News • Dec 17, 2018 15:18 GMT
Crawford Assistant House Manager, Emily, was supported at Crawford House five years ago when her son, Daniel, was born at just 25 weeks. Since then, Emily has become a support to many of the families who pass through the door at Crawford House. Here she shares her experience.
Lottie has defied everyone’s expectations to make it home in time for Christmas. We couldn’t be happier and can’t wait to introduce our greatest gift to all our friends and family.
News • Dec 13, 2018 16:46 GMT
Please see the attached family story. Kim and her partner, Jamie, were terrified when they were told their unborn baby had duodenal atresia, which meant that a portion of her small intestine was closed off. Lottie needed lifesaving surgery at Sheffield Children’s Hospital just hours after birth.
Without the charity’s help, finding a way to keep our family together would’ve been incredibly hard.
News • Dec 13, 2018 11:49 GMT
Harvey is looking forward to celebrating his first Christmas with his parents at home after a traumatic start to life. Emily and Chris, from Upper Cambourne, share their story in support of The Sick Children's Trust's Christmas Appeal.
I’m so proud of my little heart warrior and can’t wait for our first Christmas at home as a family. But we’ll never forget The Sick Children’s Trust’s support at Christmastime last year.
News • Dec 10, 2018 12:40 GMT
Mum Stacey wasn't able to spend Christmas Day with her newborn daughter Olivia, but thanks to Scott House, Olivia's Dad was with her, ensuring that she didn't wake up on her first Christmas morning alone.
We can’t wait to celebrate a worry free Christmas with the twins this year, excited that in just a few months they will be welcoming their new baby brother or sister into the world!
News • Dec 04, 2018 16:19 GMT
Ruby Price went into labour just 23 weeks into her pregnancy and was rushed to from Southend Hospital to The Rosie Hospital in Cambridge where she gave birth five days later. Leighton weighed 1lb 6oz and Lola only 1lb 2oz. Doctors warned the traumatised parents that there was a strong chance they would lose both babies. Miraculously, against all odds, they pulled through!
Nothing can prepare you for having such a tiny baby, but Crawford House has meant I’ve been with Ella-Rose every step of the way.
News • Dec 01, 2018 09:05 GMT
Ella-Rose weighed just over one pound when she was born on 31 July just 26 weeks into Sophie's pregnancy. Miraculously and against all odds she survived and made it home on her due date, which was 5 November. We supported Mum, Sophie, in Crawford House whilst Ella-Rose grew stronger in Royal Victoria Infirmary.
With the support of The Sick Children’s Trust, it’s possible for a child in hospital not to wake up alone on Christmas morning.
News • Nov 29, 2018 09:44 GMT
Jessica was born at just 27 weeks and spent nearly three months in hospital before she was discharged home – eight days before her due date. Her parents, Alison and William, were supported at Crawford House while Jessica was treated at newcastle's RVI..
When we were told our daughter might never walk again, we needed a space away from the hospital to come to terms with it.
News • Nov 29, 2018 09:34 GMT
Esmae suddenly became seriously ill just a week before Christmas and within days had lost movement in her entire body. She was diagnosed with a rare disease called transverse myelitis, which was causing inflammation of her spinal cord and swelling on her brain. Esmae spent the entire of Christmas in hospital, but didn’t wake up alone on Christmas morning because of Magnolia House.
News • Nov 26, 2018 13:13 GMT
Imogen was born with a rare condition known as Poland syndrome, which effects very few children and is characterised by the webbing of the fingers and underdevelopment of chest muscle. As a result, Imogen has undergone two major surgeries at Leeds Children's Hospital during which time her parents have been supported at Eckersley House.
In the middle of the night, when I couldn’t sleep, I was able to express and take milk up to Leo on the ward and would sit with him so he knew he wasn’t alone.
News • Nov 20, 2018 11:02 GMT
After a very long labour baby Leo suffered from a pneumothorax when he took his first breath. He required lifesaving treatment at The Rosie Hospital, an hour away from the family's home. His parents and older brother, Jenson, stayed in Chestnut House for five days whilst he recovered and Leo made it home when he was 12 days old. He turned one year old in May this year.