Tag / Rainbow House
News • Jan 02, 2018 16:46 GMT
We supported Ivy's parents when she was flown from Malta to Great Ormond Street Hospital for heart surgery.
We were told Tessa was one in 500 million and only 37 cases like hers have ever been recorded in medical history
News • Dec 22, 2017 12:04 GMT
Tessa Evans was born with an incredibly rare facial anomaly called arhinia, which means she has no nose. It is an extremely rare condition, with 47 reported cases in the history of modern medicine to this day. When she was born her parents were told she was one in 500 million, although since then the odds have gone down to one in 20 million.
The hospital treatment was of course of paramount importance, but the love of a family and being able to remain together during such a traumatic time was the best medicine by far.
News • Sep 01, 2017 17:05 BST
Evie was born with Crouzon Syndrome, a rare genetic syndrome which affects approximately one in 65,000 children at birth. It means that the seams in the plates in Evie’s skull had already fused together before she was born which would prevent her skull from growing normally. We have supported her family at Guilford Street and Rainbow Houses since she was born in 2010.
News • Aug 07, 2017 09:28 BST
A keen cyclist who completed the Prudential Ride 100 last weekend is due to take on another 100 mile cycling challenge in September to fundraise for The Sick Children’s Trust charity and ‘Let’s talk about William’.
News • Apr 21, 2017 16:53 BST
Colin day and his friends who are all novice cyclists are taking on The Way of the Roses cycle challenge next month to raise money in memory of Lydia who sadly passed away last year. They're hoping to raise £9,000.
News • Mar 01, 2017 16:34 GMT
Georgia is taking on the Virgin Money London Marathon for #TeamSCT in memory of her sister Sydnee who sadly passed away last September. Throughout her life, Sydnee was in and out of her local hospital and Great Ormond Street Hospital, where we supported her family with free accommodation.
News • Nov 07, 2016 16:55 GMT
Cara has set herself the challenge of completing the South West Coast Path Walk in two months to raise money for The Sick Children's Trust, Merley Community Pre-School and Meningitis Now as thanks for the charities' support.
News • Aug 10, 2016 16:44 BST
On Saturday 20 August come and join The Sick Children’s Trust for its annual sponsored walk.
You’re just a few minutes’ walk from your sick child’s bedside. If you need to be there during the night, you can be.
News • Apr 29, 2016 11:02 BST
Claire and Stefano were supported at Rainbow House while their baby daughter underwent three life-saving operations, and a fourth one earlier this year.
Blog posts • Apr 08, 2016 14:00 BST
Gregg answered a few questions for us just two weeks ahead of the London Marathon.
News • Mar 17, 2016 11:27 GMT
Grandad Denham is aiming to raise over £2,000 to help another family in Rainbow House after we supported his son and daughter-in-law when their daughter, Layla, required heart surgery.
News • Mar 07, 2016 09:10 GMT
Linsey Smith will be running The Grizzly next weekend to say thank you for supporting her friend Gemma as a child by giving her family a 'Home from Home' as she battled cancer.
News • Jan 25, 2016 11:27 GMT
Thomas' family stayed with us at Rainbow House last year when her underwent his fourth heart surgery. Here's their story.
News • Jan 04, 2016 12:27 GMT
Jessie was born with one lung and had a narrowed trachea. Jessie’s family stayed with us at Acorn House when she was being treated at Addenbrooke’s and at Rainbow House when she was treated at Great Ormond Street Hospital.
News • Dec 18, 2015 10:58 GMT
Finley spent last Christmas in hospital, but this year he will be spending it at home
Staying at Rainbow House meant that we didn’t have to decide between being with our sick baby and being there for our other children
News • Oct 14, 2015 12:36 BST
Baby Teddy needed heart surgery at GOSH, and we supported his family at Rainbow House – they have two daughters and were particularly grateful that the whole family could be kept together during this time
Without The Sick Children's Trust we honestly don't think we’d have had the energy to nurse Eliza back to full health
News • Oct 02, 2015 14:55 BST
"Before Eliza had become unwell we didn’t even know The Sick Children’s Trust and its ‘Homes from Home’ existed and then all of a sudden we were reliant on it. We can’t thank The Sick Children’s Trust enough for their help and support during such a difficult time in our lives."
Staying together as a family has helped Lauren grow up as a very strong and brave little girl, who we are very proud of
News • Jul 28, 2015 12:40 BST
Our daughter Lauren was born with a life-threatening type of immune deficiency, a condition with only one cure - a bone marrow transplant. In 2006 Lauren went through her first bone marrow transplant at Great Ormond Street Hospital, but it was unsuccessful. After being fitted with a tracheostomy in 2014, she is now in the early days of recovery following her second bone marrow transplant (2015).