Knowing your baby could stop breathing every time they go to sleep is a terrifying reality that turns your world upside down.
News • Feb 28, 2018 09:00 GMT
Baby Sydney-Rose was diagnosed with necrotising enterocolitis and had to be transferred by emergency to The Rosie Hospital in Cambridge, over 90 minutes from her family's home. We supported her family at Chestnut House. Shortly after that we supported the Keatings again at Stevenson House when Sydney-Rose stopped breathing and required further lifesaving treatment. Mum, Tate, tells their story.
News • Feb 27, 2018 09:00 GMT
Born with gastroschisis Nelly was transferred by emergency to The Royal London Children’s Hospital shortly after birth. At just 12 hours old she underwent the lifesaving operation to put her intestines back into her body. The operation was a success and for six weeks whilst Nelly recovered in hospital we supported her parents with a room at Stevenson House.
News • Feb 26, 2018 09:38 GMT
We are currently supporting Kylan's family at Crawford House while he undergoes treatment at Newcastle's Royal Victoria Infirmary. Mum Amy has shared his story ahead of Rare Disease Day this Wednesday.
News • Feb 26, 2018 09:30 GMT
Kylan was admitted to Newcastle's Royal Victoria Infirmary where he was diagnosed with a rare, life limiting muscle disorder. His family are currently being supported at Crawford House.
News • Feb 23, 2018 16:14 GMT
Sue Cain is organising her second charity ball in aid of The Sick Children's Trust and two other charities close to her heart.
I can’t put in to words what it feels like to be told your two year old daughter has a life-threatening brain tumour. And that it’s growing so deep inside her head that they might not be able to remove it all.
News • Feb 15, 2018 09:00 GMT
Mum, Dani Spence, stayed with us at Magnolia and Treetop House whilst her daughter, Lacey, underwent lifesaving treatment to remove a brain tumour in Sheffield Children's Hospital. Fortunately Lacey is now out of hospital and recovering well. Here Dani tells her story.
News • Feb 14, 2018 09:00 GMT
A grateful dad, Mark Dean, whose two year old son required emergency lifesaving treatment when he was born will be running the Virgin Money London Marathon to raise money for The Sick Children’s Trust after we gave him and his wife, Poppy, a room at Chestnut House whilst baby David was in The Rosie Hospital
News • Feb 13, 2018 09:10 GMT
Next month, Tim will be running the Brentwood Half Marathon to raise money for us as thanks for supporting him and partner Victoria at Stevenson House in 2013 when their son Jack was born.
Having a room to stay in at Acorn House gave us a quiet place to be together and reflect on how lucky we had been.
News • Feb 12, 2018 11:36 GMT
Pollyanna's parents were supported by The Sick Children's Trust at Acorn House after she underwent lifesaving surgery at just 12 weeks old.
News • Feb 09, 2018 16:11 GMT
Charlie and Ross were supported at Stevenson House when their daughter, Eva, was born prematurely at 27 weeks.
Ella got a new heart after five months in Freeman Hospital. A lot of that time she was on life support and it felt like we were too, but getting a new heart finally brought my baby back to life.
News • Feb 08, 2018 14:56 GMT
Ella was just 11 months old when her heart began to fail. Six months later she underwent her first open heart surgery at Freeman Hospital in the hope that her heart could be repaired, but this wasn’t to be the case. It was decided her only chance of survival would be to have a heart transplant and her family began the agonizing wait.
No sooner had I given birth to my baby he was taken away from me for lifesaving treatment, it was heartbreaking.
News • Feb 07, 2018 09:33 GMT
Davey was born with a condition called congenital diaphragmatic hernia – a birth defect causing a hole in the diaphragm, allowing the organs from the abdomen to move into the chest. While he was receiving specialist treatment at Leeds General Infirmary we supported his family at Eckersley House.
It was so nice to bring James over at dinner time so that we could all eat together and be as we would be at home.
News • Feb 06, 2018 09:04 GMT
James was involved in a motorbike accident in which the bike caught fire and was rushed to Newcastle’s Royal Victoria Infirmary - an hour away from home. For the next nine weeks, his parents Claire and Louis along with James’ younger brother stayed at Crawford House, with family visiting and spending time there until he was well enough to be discharged home.
We had been told about Scott House but had not been expecting the level of comfort, not to mention how close it was to the hospital.
News • Feb 05, 2018 13:09 GMT
Olivia was born with Ebstein's anomaly, a rare heart condition which accounts for just 1% of congenital heart conditions. Since she was born, she has undergone specialist treatment at both the Royal Victoria Infirmary and Freeman Hospital in Newcastle upon Tyne, where we have supported her family in Crawford and Scott Houses.
At a time when we were completely lost and didn’t know what to do with ourselves, we were given a place to go.
News • Jan 30, 2018 13:24 GMT
At just a few days old, Amelia underwent major heart surgery after being diagnosed with a aortic narrowing and large hole in the heart. She was then admitted back to Freeman Hospital just before Christmas 2016 where she underwent went open heart surgery. On both occasions we supported her family at Scott House and to say, Dad Paul ran the Great North Run last year, raising £2,000 for us and CHUF.
When Summer-Mae was strong enough we were invited to take her to a tea party at Treetop House and we caught up with the other families and staff.
News • Jan 22, 2018 18:23 GMT
Summer-Mae was born in November 2008 and is seriously disabled. Last September, while the family of nine were on a family holiday together, Summer-Mae became seriously ill and had to be ventilated and placed into a medically induced coma before being transferred to Sheffield Children’s Hospital. We supported her family whilst Summer-Mae recovered.
Since the stem cell transplant, Thomas’ immune system has developed and I can’t believe our little boy will be six at the end of January
News • Jan 22, 2018 10:06 GMT
Thomas' parents stayed at both Eckersley and Crawford House when their baby son, Thomas, was seriously ill as a baby. Finally it was discovered that Thomas had a rare primary immune deficiency disorder meaning that he did not have the ability to generate antibodies needed to fight off infections and would require a stem cell transplant when a donor became available.
News • Jan 19, 2018 15:53 GMT
Leeander and Zariah feature in Sunday's BBC Lifeline appeal presented by Michael Crawford CBE. Zariah was diagnosed with heart failure and needed a lifesaving donor heart to survive. Shortly after filming for BBC Lifeline, Leeander received the call she had been waiting for.
At the time when I desperately needed to be with my son, The Sick Children’s Trust made that possible.
News • Jan 19, 2018 11:00 GMT
Ned was born at 28 weeks weighing just 1.2kilos. He had a grade four bleed on the brain, sepsis and needed resuscitating and ventilating. Mum, Kerry, was told that the odds were very much against him and it was unlikely he would survive. However today, Ned celebrates his first birthday.
News • Jan 18, 2018 12:59 GMT
Darcie-May, along with her parents Nathan and Zara, will feature in Sunday's BBC Lifeline appeal to raise awareness and money for The Sick Children's Trust.