Christmas and New Year were a horrendous time, but at least my family were kept together thanks to The Sick Children’s Trust
News • Feb 12, 2019 12:27 GMT
Connie was diagnosed with spinal muscular atrophy type 1 when she was just seven weeks old. This is a neuromuscular disorder and babies with the condition rarely live beyond the age of two. However, a week later her parents met with a specialist, who told them about a new drug, Nusinersen. Connie had her latest injection the same day she celebrated her first birthday and is stronger than ever!
At Guilford Street House I could take a step back from the ward to recover from the physical and mental exhaustion.
News • Jan 17, 2019 09:03 GMT
Harry’s life is split between Great Ormond Street Hospital, Birmingham Children’s Hospital and Warwickshire. Harry’s had to undergo major operations and his parents have been told several times that he may not live to see another day because he has a rare heart condition called Shone’s complex. His dad has been supported at Guilford Street House.
Family and friends of Sophie Pokorny exceed £20,000 mark in fundraising campaign for The Sick Children’s Trust
News • Jan 15, 2019 11:24 GMT
The friends and family of three year old Sophie Pokorny who tragically passed away last summer have raised over £20,000 for The Sick Children’s Trust in her memory after a huge fundraising drive. Sophie's parents, Karl and Abbie, were supported in Rainbow House whilst she waited for a donor heart to become available in Great Ormond Street Hospital.
News • Nov 08, 2018 16:39 GMT
A group of friends who have already raised over £12,000 are taking on the adidas Fulham 10km city run to raise even more money for The Sick Children’s Trust in memory of three year old Sophie Pokorny who tragically passed away at the end of the summer.
News • Mar 20, 2018 09:00 GMT
Andrew Harvey, 43, from Bacton, is training five days a week to complete the Virgin Money London Marathon and raise £2,500 for The Sick Children’s Trust which supported his neighbours, Tracey and Gary Lowings, with free ‘Home from Home’ accommodation while their son, Harry, battled for his life in two specialist hospitals miles away from home.
News • Mar 19, 2018 15:20 GMT
Emma Ford is taking on her first ever marathon challenge to raise money for The Sick Children's Trust who continue to support her close friends, Tracy and Adrian Bloor, whose son Alexander is in desperate need of a new heart. She will run the Virgin Money London Marathon on 22 April alongside 16 other #TeamSCT runners.
News • Jan 02, 2018 16:46 GMT
We supported Ivy's parents when she was flown from Malta to Great Ormond Street Hospital for heart surgery.
We were told Tessa was one in 500 million and only 37 cases like hers have ever been recorded in medical history
News • Dec 22, 2017 12:04 GMT
Tessa Evans was born with an incredibly rare facial anomaly called arhinia, which means she has no nose. It is an extremely rare condition, with 47 reported cases in the history of modern medicine to this day. When she was born her parents were told she was one in 500 million, although since then the odds have gone down to one in 20 million.
Family support The Sick Children's Trust's Christmas appeal as thanks for giving them a ‘Home from Home’
News • Dec 19, 2017 12:50 GMT
Alexander Morris' family have donated £210 to our Christmas appeal, bringing us closer to our target of £13,140, enough to keep our ten 'Homes from Home' running over the festive period!
Dad and friends complete national Three Peaks Challenge in just 27 hours to thank The Sick Children’s Trust
News • Sep 19, 2017 11:37 BST
Dad and friends take on mammoth Three Peaks Challenge and raise over £4,000 for The Sick Children's Trust
The hospital treatment was of course of paramount importance, but the love of a family and being able to remain together during such a traumatic time was the best medicine by far.
News • Sep 01, 2017 17:05 BST
Evie was born with Crouzon Syndrome, a rare genetic syndrome which affects approximately one in 65,000 children at birth. It means that the seams in the plates in Evie’s skull had already fused together before she was born which would prevent her skull from growing normally. We have supported her family at Guilford Street and Rainbow Houses since she was born in 2010.
News • Aug 24, 2017 09:15 BST
Jay has been in and out of hospital all his life. In July he underwent a gastric pull up where part of his oesophagus was replaced with reconstructed stomach tissue and his stomach was moved up into his chest. And because of Jay's sheer determination, he recovered from his operation quickly and will be going back to school in September to start year one.
News • Aug 23, 2017 16:56 BST
Hayden underwent major lifesaving surgery at just three months old when doctors discovered he had two holes in his heart and a tear. During his time at GOSH, we supported his family at Guilford Street House.
News • Aug 08, 2017 15:12 BST
We supported Julie when her daughter Rebecca was seriously ill in Great Ormond Street Hospital and since she has been fundraising for us along with friends and family.
News • Jul 06, 2017 14:00 BST
Scott and Liv, along with their eldest son Theo, were supported by Guilford Street House when their son Noah was undergoing treatment in Great Ormond Street Hospital. They have shared their story to thank us for the enabling them to spend as much time with possible with their son during his precious few months of life.
News • Jul 05, 2017 10:53 BST
We supported Jake's parents at Guilford Street House when he needed treatment in Great Ormond Street Hospital.
News • Jun 21, 2017 11:49 BST
The Sick Children's Trust helped the Hicks family when their baby daughter, Lily, was given just a 20% chance of survival after contracting bacterial meningitis. Now the Hicks family have taken on an ambitious fundraising challenge for the charity to say thank you.
Thank you for allowing us to be together and support one another when we felt our world was about to come crashing down.
News • May 04, 2017 09:40 BST
Darcie was born with gastroschisis which meant her intestines were outside her body and colonic atresia; a gap in her large intestine. We supported her parents, Jade and Lewis at Guilford Street House during her treatment.
News • Apr 28, 2017 13:06 BST
Ten years ago Jane and Neil experienced the heartbreak of losing their baby daughter, Emma. Since they have been fundraising in her memory. On Saturday 13 May they will be holding a Big Chocolate Tea family fun day to raise money for us as thanks for supporting them in Guilford Street House.
News • Apr 21, 2017 16:53 BST
Colin day and his friends who are all novice cyclists are taking on The Way of the Roses cycle challenge next month to raise money in memory of Lydia who sadly passed away last year. They're hoping to raise £9,000.